Day +126

I didn't see a copy of my labs this week yet due to the holidays but Dr. Burt would have called if anything was noteworthy. Flagyl never really helped too much with the symptoms so my GI ordered more cultures to test for C. diff again and some other stuff before trying another antibiotic. I asked Dr. Burt about possibly stopping some of the prophylactic antibiotics since I haven't been on Cyclosporine or Cellcept (the immunosuppressants) for a while now and he said to stop Bactrim and Diflucan. Since stopping those, and finishing the course of Flagyl, I haven't had any nausea or vomiting. I did come down with another cold, though. I had a bit of a sore throat on Tuesday that went away for a bit and came back, then had sneezing and a runny nose by the time I went to bed. I'm taking Mucinex D during the day and Nyquil before bed and they're helping. I felt pretty bad yesterday but considerably better today. The results of the cultures should be ready on Monday or Tuesday so I should be able to start whatever's necessary then.

Day +120

Labs were fine this week. The test for C. diff came back negative, but it could be a false negative. My GI is having me finish the course of Flagyl and added Florastor, a probiotic that should help fight C. diff as well. I'm feeling a little better, but not a lot. Been having a more frequently upset stomach and vomiting from the antibiotics. I'll get in touch with my GI on Monday and see what she wants to do. It will probably either be more Flagyl or Vancomycin.

Day +112

Labs looked good again this week. I never really was back to feeling too well after last weekend. Dr. Burt had me stop Cellcept to see if that would help any, as well as for the chimerism. It was a bit up and down and then I was feeling worse with GI symptoms later this week. It seems exactly like how I got C. diff before, so I feel pretty sure that's what it is again. They're testing for it to be sure, but I'm already going to start a 10 day course of Flagyl. I have an appointment with my local GI on Monday so she can look after things and they don't have to play long distance doctor from Chicago quite as much.

Day +106

Labs were fine this week, and I stopped Magnesium. I saw my Endocrinologist this week. He gave me an order for blood work to start with and we'll go from there. He wasn't very familiar with the stem cell transplant so he will probably want to wait until most of the recovery is over with and he has more confidence in the results of whatever tests he would do.

I saw my Ophthalmologist, as well. My eyes changed a bit since last time. My vision is the same, but my pupils are slightly flat (extremely hard to notice). It doesn't mean much on its own since I don't have any issues, but it's a noteworthy change since they've always been round until now. Everything else was fine so I'll see him again in 4 months.

I didn't post the update yesterday since I wasn't feeling too well. The antibiotics bothered my stomach and I vomited twice. I just relaxed for the rest of the day. I took them again this morning and I'm feeling fine, so I guess it was just another fluke.

Day +98

I'm still feeling better since stopping Flagyl. Labs looked fine again this week. The chimerism results came back and it turns out it was negative for any of the donor immune cells. The immunosuppressants/anti-rejection meds could be preventing/hindering the process, so Dr. Burt is having me stop Cyclosporine. I may stop CellCept in a few weeks, as well. It's also possible not getting the last dose of Campath is playing a part in it. I'll have another chimerism test in about a month. It's not uncommon for the donor cells to take more time to show up.

I meant to take a new picture sooner since my hair was growing back.